Overview
Carcinoid syndrome is a rare condition that happens if you have neuroendocrine tumors. Neuroendocrine tumors (NETs) are tumors that start in specialized cells in your neuroendocrine system.
NETs develop when your neuroendocrine cells begin to rapidly divide and multiply, creating tumors that release unusually large amounts of serotonin and other substances. When that happens, you develop carcinoid syndrome symptoms. Sometimes, a carcinoid syndrome diagnosis is the first indication you have a neuroendocrine tumor.
Very rarely, people with carcinoid syndrome have carcinoid crises, a potentially life-threatening condition that can happen if your carcinoid syndrome goes undiagnosed or untreated.
Is carcinoid syndrome common?
No, it’s not. One study suggests 1 in 5 people with neuroendocrine tumors (NETs) have carcinoid syndrome, and NETs affect about 5 in 100,000 people in the United States.
Symptoms
When to see a doctor
Complications
- High blood pressure.
- Diabetes.
- Heart failure.
- Some types of heart valve disease.
Prevention
- Control high blood pressure, high cholesterol and diabetes.
- Don't smoke or use tobacco.
- Eat a diet that's low in salt and saturated fat.
- Exercise at least 30 minutes a day on most days of the week unless your health care team says not to.
- Get good sleep. Adults should aim for 7 to 9 hours daily.
- Maintain a healthy weight.
- Reduce and manage stress.
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