Overview
A healthcare provider will diagnose Ehlers-Danlos syndrome with a physical exam and by discussing your medical history. They’ll examine your skin and joints and ask you about your symptoms. Tell your provider when you first noticed symptoms or if any activities make them worse.
Most people with Ehlers-Danlos syndrome don’t have a known genetic mutation, so providers usually diagnose it based on your symptoms and medical history.
Symptoms
When to see a doctor
Complications
- High blood pressure.
- Diabetes.
- Heart failure.
- Some types of heart valve disease.
Prevention
- Control high blood pressure, high cholesterol and diabetes.
- Don't smoke or use tobacco.
- Eat a diet that's low in salt and saturated fat.
- Exercise at least 30 minutes a day on most days of the week unless your health care team says not to.
- Get good sleep. Adults should aim for 7 to 9 hours daily.
- Maintain a healthy weight.
- Reduce and manage stress.
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